Aug 16, 2010
Posted by Beth on Aug 16, 2010 in Cancer, Myeloma, Myeloma Treatment | 3 comments
A reader just told me about this. How cool! I’m going to go vote for the “Myeloma Survivor” right now! You can vote every 24 hours.
http://www.sponsafier.com/#/gallery/view/367247
I thought you may be interested to know that the International Myeloma Foundation has entered a Toyota racecar design in a contest called Sponsafier. The winning entry will be built as a full sized car, and your votes can help push myeloma awareness across the finish line.
The idea and the car design come from a myeloma patient in Normal, Illinois. Keith May has covered the car with slogans to raise awareness of myeloma, and the work being done to beat it. The IMF has named the car “The survivor.”
“Survivor” is one of several hundred entries in the Sponsafier contest. Some entries are just artistic designs and some like Keith’s support a cause. For the next 12 days, please log onto nascar.myeloma.org to vote for Keith’s design. Please also ask your friends, families and colleagues to vote too.
This is a great opportunity to educate a new audience about myeloma and blood cancers, the advances that have been made in treatment and the challenges that lie ahead.
May 28, 2010
Posted by Beth on May 28, 2010 in Life, Myeloma, Myeloma Treatment | 1 comment
From a reader:
I’m writing from StoryCorps, America’s largest nonprofit national
oral history project. Because our broadcast this morning on NPR talks
about the experience of a family affected by multiple myeloma, I
thought it might be worth sharing with your readers. Please have a
listen!
Sy Saliba talks to his daughter, Yvette, about her mother, Pat, who
passed away from multiple myeloma, a type of blood cancer, in 2005.
http://bit.ly/93jYOB
StoryCorps is an independent nonprofit project whose mission is to
honor and celebrate one another’s lives through listening. Since 2003,
tens of thousands of people from across the country have interviewed
family and friends through StoryCorps. Each conversation is recorded
on a free CD to take home and share and is also archived for
generations to come at the Library of Congress.
May 3, 2010
Posted by Beth on May 3, 2010 in Cancer, Health News, Life, Myeloma, Myeloma Blogs, Myeloma Treatment | 1 comment
MyelomaBlogs.org, a blog feed aggregator for patient and caregiver myeloma blogs, has been revamped. It’s all new, thanks to our good friend, Lopo Lencastre de Almeida of iPublicis.
The site has a new look and will allow you to read a short excerpt of posts, search posts and browse by tags. You can also help spread the word by sharing blogs posts on many social networking sites.
You’ll see what I mean. Head on over to http://www.myelomablogs.org/.
Apr 19, 2010
Posted by Beth on Apr 19, 2010 in Myeloma Treatment, Thalomid | 0 comments
http://watch.ctv.ca/news/w5/pills-patients–profits/#clip281624
Canada’s news program, W5 (which I assume is shorthand for who, what, when, where and why) , did a program called, “Pills Patients & Profits.” You can see the entire segment on their web site. Click on the link or image above to watch part 3, which focuses on the cost of thalidomide (Celgene’s Thalomid), which is an important treatment for multiple myeloma.
It’s very informative, so please do watch all four parts.
Apr 15, 2010
Posted by Beth on Apr 15, 2010 in Myeloma, Myeloma Blogs, Myeloma Treatment | 0 comments
Most of us need to find reasons to spend more time on facebook, so Margaret and I have come up with a facebook group for myeloma patients, caregivers, friends, family and others.
http://www.facebook.com/group.php?gid=108654495840465
From Margaret’s blog:
- And finally, as if we weren’t busy enough!, day before yesterday a friend and I decided to create a Multiple Myeloma Support Group on Facebook. It’s a private support group (that is, FB users who are not group members cannot read anything we write)…so, if you belong to FB, please join us! The group was created less than 48 hours ago, and we already have 74 members… By the way, this group is intended mainly for myeloma, SMM and MGUS folks and caregivers, but other cancer patients are welcome, too. Click on: http://www.facebook.com/group.php?v=app_2373072738&gid=108654495840465#!/group.php?gid=108654495840465 (I hope the link works…please let me know if it doesn’t). Then click on “Request to join.” If your membership request doesn’t get approved immediately, that simply means that Beth and I aren’t online, so please be patient. Anyway, until there is a cure, we need to provide support for one another…and also exchange useful information about both conventional and alternative treatments, with a bit of humor sprinkled around, whenever possible…!
- While you are at it, you can also become a fan of my blog on FB: http://www.facebook.com/photo.php?pid=3900082&id=600258519#!/pages/Margarets-Corner-Living-with-smoldering-myeloma/312414599519?ref=ts
Please join us there. Stop in and say hello!
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