Comments for Beth's Multiple Myeloma Blog http://myelomablog.com Ramblings and rants about my life, including my myeloma experiences. (Since 2003) Tue, 06 Jan 2009 21:56:56 +0000 http://wordpress.org/?v=2.7 hourly 1 Comment on Lyrica by Beth http://myelomablog.com/2009/01/03/lyrica/comment-page-1/#comment-4969 Beth Tue, 06 Jan 2009 16:19:15 +0000 http://myelomablog.com/?p=971#comment-4969 I HAVE some curc. I was taking it every day (4 g) for about 2 weeks and then something happened. I'm such a slacker. I'll start back up today. I think it might have been helping, too. I HAVE some curc. I was taking it every day (4 g) for about 2 weeks and then something happened. I’m such a slacker. I’ll start back up today. I think it might have been helping, too.

]]> Comment on Lyrica by Margaret http://myelomablog.com/2009/01/03/lyrica/comment-page-1/#comment-4968 Margaret Tue, 06 Jan 2009 11:09:00 +0000 http://myelomablog.com/?p=971#comment-4968 How about trying curcumin for PN? I used to have night-time PN, nothing major, but it still woke me up, in my pre-curcumin period. No more. Plus, there are studies out there confirming that it helps (I read about inherited PN, see http://www.cell.com/AJHG/abstract/S0002-9297(07)61342-1, and these were mouse tests, but it's still PN). Anyway, it can't hurt, could help... Margaret Florence, Italy How about trying curcumin for PN? I used to have night-time PN, nothing major, but it still woke me up, in my pre-curcumin period. No more. Plus, there are studies out there confirming that it helps (I read about inherited PN, see http://www.cell.com/AJHG/abstract/S0002-9297(07)61342-1, and these were mouse tests, but it’s still PN).

Anyway, it can’t hurt, could help…

Margaret
Florence, Italy

]]> Comment on Lyrica by John E. Smith http://myelomablog.com/2009/01/03/lyrica/comment-page-1/#comment-4965 John E. Smith Sun, 04 Jan 2009 05:13:04 +0000 http://myelomablog.com/?p=971#comment-4965 I spoke with my oncologist on Friday about the etifoxine study from France. He had not read the abstract, so could not comment directly. He ventured that it may alleviate the pain but not correct the numbness. I'm not sure I trust that assessment because there are already decent options for the pain. I don't intend to pursue relief from my PN just yet. I'm drug free for the first time in a year and don't want to take any mood enhancers. Etifoxine is primarily used for anxiety disorders. If you have access to PNAS, you could read further about it. Their title is: Full Text Etifoxine improves peripheral nerve regeneration and functional recovery PNAS 2008 105:20505-20510 Here's the link: http://www.pnas.org/content/105/51/20505.full So, they are talking about regenerating the nerves. That sounds promising. I spoke with my oncologist on Friday about the etifoxine study from France. He had not read the abstract, so could not comment directly. He ventured that it may alleviate the pain but not correct the numbness. I’m not sure I trust that assessment because there are already decent options for the pain.

I don’t intend to pursue relief from my PN just yet. I’m drug free for the first time in a year and don’t want to take any mood enhancers. Etifoxine is primarily used for anxiety disorders.

If you have access to PNAS, you could read further about it. Their title is:

Full Text
Etifoxine improves peripheral nerve regeneration and functional recovery
PNAS 2008 105:20505-20510

Here’s the link: http://www.pnas.org/content/105/51/20505.full

So, they are talking about regenerating the nerves. That sounds promising.

]]> Comment on Lyrica by Teresa Krone http://myelomablog.com/2009/01/03/lyrica/comment-page-1/#comment-4964 Teresa Krone Sat, 03 Jan 2009 23:02:03 +0000 http://myelomablog.com/?p=971#comment-4964 Richard took Lyrica for about two weeks then quit because of swelling. Gabapentin didn't help either. I have had patients who took Lyrica for diabetic neuropathy or fibromyalgia who did think it was helpful. The problem is that when you maximize the dose, you get swelling which is uncomfortable. Richard took Lyrica for about two weeks then quit because of swelling. Gabapentin didn’t help either. I have had patients who took Lyrica for diabetic neuropathy or fibromyalgia who did think it was helpful. The problem is that when you maximize the dose, you get swelling which is uncomfortable.

]]> Comment on Holiday greeting from Lopo by Topaz http://myelomablog.com/2008/12/24/holiday-greeting-from-lopo/comment-page-1/#comment-4957 Topaz Tue, 30 Dec 2008 02:54:23 +0000 http://myelomablog.com/?p=969#comment-4957 Wishing you a Happy New Year and thanks for your comments in my blog. Wishing you a Happy New Year and thanks for your comments in my blog.

]]> Comment on How I learned about Falun Gong by JAMES http://myelomablog.com/2008/09/30/how-i-learned-about-falun-gong/comment-page-1/#comment-4956 JAMES Mon, 29 Dec 2008 03:25:34 +0000 http://myelomablog.com/?p=816#comment-4956 FALUN GONG IS GOOD MR LI HONG ZHI IS GOOD FALUN GONG IS GOOD
MR LI HONG ZHI IS GOOD

]]> Comment on Midwest ice by Janet http://myelomablog.com/2008/12/21/midwest-ice/comment-page-1/#comment-4955 Janet Sat, 27 Dec 2008 21:32:37 +0000 http://myelomablog.com/?p=963#comment-4955 I guess I'm glad to be in Houston even though the reason is not good. Here it is warm but stormy and humid. Seems strange for this time of year. Back home in Idaho they have been getting dumped on with snow -- another 8" last night. They must be near 3' on the ground although it does compact some. I live in almost a mile from the county road on a shared private road. One of the neighbors has become a snowbird and goes to Yuma. The other has a "cat" and does most of the work on the joint road. I have about 1/4 mile to do of my own with my snow thrower. He has been trying to keep up but has had to spend a lot of time working on the cat this last week and luckily one of the other neighbors has helped out. I think my part of the road has remained unplowed. Hopefully by the time I get home in a few weeks some of the snow will have melted. I know they'll do their best to get things opened up for me. Hope you had a great Christmas. I guess I’m glad to be in Houston even though the reason is not good. Here it is warm but stormy and humid. Seems strange for this time of year.

Back home in Idaho they have been getting dumped on with snow — another 8″ last night. They must be near 3′ on the ground although it does compact some.

I live in almost a mile from the county road on a shared private road. One of the neighbors has become a snowbird and goes to Yuma. The other has a “cat” and does most of the work on the joint road. I have about 1/4 mile to do of my own with my snow thrower. He has been trying to keep up but has had to spend a lot of time working on the cat this last week and luckily one of the other neighbors has helped out. I think my part of the road has remained unplowed.

Hopefully by the time I get home in a few weeks some of the snow will have melted. I know they’ll do their best to get things opened up for me.

Hope you had a great Christmas.

]]> Comment on Midwest ice by mn sunshine http://myelomablog.com/2008/12/21/midwest-ice/comment-page-1/#comment-4954 mn sunshine Thu, 25 Dec 2008 01:23:53 +0000 http://myelomablog.com/?p=963#comment-4954 I think the weather this December is really rotten!! ... Especially for December!! I think the weather this December is really rotten!! … Especially for December!!

]]> Comment on Shingles, schmingles by Maddie http://myelomablog.com/2008/01/12/shingles-schmingles/comment-page-1/#comment-4951 Maddie Tue, 23 Dec 2008 09:04:37 +0000 http://www.myelomablog.com/2008/01/12/shingles-schmingles/#comment-4951 Hi everyone, Well i have read all of your post and i feel for you. I am a 13 year old girl who had shingles on Boxing Day 2007 so i had it when i was 12. I noticed that the spots were coming up all around my eye and throughout my hair. I thought they were migi bites and told my mother. When they started to get worse and progress my mother was concerned but she could not take me to the docters for it what Christmas day. So the next day mum took me to the docters and they told me i had shingles. I had to take these tablets, i hated it because i dont take tablets, as i would say at home "I dont do tablets!". So my Christmas was consistive of rest, tablets in ice cream, regular visits to the docters and sleep. I slept a lot throughout Christmas feeling as miserable as ever. Shingles - GAY! i hate them anyways i better be off cya all Maddie Hi everyone,

Well i have read all of your post and i feel for you.
I am a 13 year old girl who had shingles on Boxing Day 2007 so i had it when i was 12. I noticed that the spots were coming up all around my eye and throughout my hair. I thought they were migi bites and told my mother. When they started to get worse and progress my mother was concerned but she could not take me to the docters for it what Christmas day. So the next day mum took me to the docters and they told me i had shingles. I had to take these tablets, i hated it because i dont take tablets, as i would say at home “I dont do tablets!”. So my Christmas was consistive of rest, tablets in ice cream, regular visits to the docters and sleep. I slept a lot throughout Christmas feeling as miserable as ever.

Shingles - GAY!

i hate them

anyways i better be off

cya all

Maddie

]]> Comment on Exciting Multiple Myeloma Data at ASH by Don http://myelomablog.com/2008/12/15/exciting-multiple-myeloma-data-at-ash/comment-page-1/#comment-4941 Don Sat, 20 Dec 2008 23:14:01 +0000 http://myelomablog.com/?p=961#comment-4941 I'm in Dr. Lacy's study of pomalidomide (CC-4047) and I can tell you she is enthusiastic about it. I’m in Dr. Lacy’s study of pomalidomide (CC-4047) and I can tell you she is enthusiastic about it.

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